Rare Disease Day-Patient Centred Research

Rare Disease Day-Patient Centred Research

NIHR Cambridge BRC

Rare Disease Day 2023 - Accelerating Rare Disease Research: Patients as Partners

Broad Institute

FDA Rare Disease Day 2023: “Intersections with Rare Diseases – A patient focused event”

U.S. Food and Drug Administration

Patient-Centered Outcomes Research Program for Rare Disease Patients

What is Rare Disease Day?

National Organization for Rare Disorders (NORD)

Rare Disease Day Official Video 2024

Patients in Rare Disease Research: An Industry Perspective

Bringing awareness to rare diseases on Rare Disease Day

Rare Disease Day Official Video 2023

Rare Disease Day at NIH 2022: Cure JM Session-

Cure JM Foundation

Rare Disease Day Official Video 2017

Manchester Rare Conditions Centre | Rare Disease Day 2024

Manchester Foundation Trust Charity

Rare Disease Day 2024: Highlighting Patient Stories and Advancements in Rare Disease Research

Redefining Rare Disease Research - The Rare Disease Translational Center @jacksonlaboratory

The Jackson Laboratory

Patients at the Center of Rare Disease Research

New Rare Disease Drugs and Research Advancements

What is Patient-Focused Drug Development (PFDD)?

National Organization for Rare Disorders (NORD)

Rare Disease Day 2021 official video

The Ehlers-Danlos Society celebrates Rare Disease Day 2021

The Ehlers-Danlos Society

Rare Disease Day 2019: Bridging Health and Social Care

CPI Centre for Personalised Immunology